When Virtual seminar on Tuesday 29 August 2023, 9am – 9.50am (AEST)
Where Online. Link will be provided in the registration confirmation email.
Registration Registration is free and available here.
Join Australian Genomics’ DNA dialogue seminar, “Expanding Indigenous research protocols: Sovereignty and data user agreements”, featuring Dr Rodney Haring from the Roswell Park Centre for Indigenous Cancer Research in Buffalo, New York.
In the COVID-19 emergency state many Indigenous Nations contracted with commercial entities and other organization types to conduct rapid diagnostic and antibody testing. They also partnered with public-private enterprises on clinical trials to further the development of vaccines. Indigenous people contributed biological samples for assessment and, in many cases, broadly consented for indefinite use for future genomics research placing Indigenous communities in a position to forego critical review of data use agreement (DUA) by Indigenous governances. In response, a DUA template was created by an Indigenous Cancer Research team, alongside a cohort of Indigenous attorneys, vetted by a US-based cancer center’s legal department, with final approval coming from an inter-tribal community advisory board.
About the speaker
Dr Rodney Haring is the inaugural Chair of the Roswell Park Department of Indigenous Cancer Health in Buffalo, New York (NY), USA. He is also a past fellow at the National Congress of American Indians and Mayo Clinic. Rodney is an enrolled member of the Seneca Nation of Indians (Beaver Clan) and resides on the Cattaraugus Indian Reservation (NY). He holds a doctoral degree in social work and has more than 15 years of social work practice. He was a delegate on the US Department of Health and Human Services’ American Indian and Alaska Native Health Research Advisory Council. The council works with tribal leaders to set priorities and make recommendations to the Department’s leadership regarding Native health programs and policies. He is the lead delegate for the historic Memorandum of Understanding between Roswell Park and the United States federal Indian Health Services with the common mission of addressing health burdens in Indigenous communities. In 2017 he was awarded an Impact Award by the National Indian Health Board and in 2021 he received the National Federation of Just Communities Hero Award. Rodney’s research interests centre around eliminating disparities and encouraging resilience within Indigenous communities.
About DNA dialogue
With the wealth of genomic expertise internationally, this seminar series is a forum for members of the genomics community in Australia and beyond to learn of new developments in health genomics, and the overseas experience.
The topics are diverse, including data sharing, ethics, carrier screening, cancer genomics, genomics in emerging health systems, and more.
DNA dialogue seminars are held live via zoom and registration is open to anyone working in, or impacted by, medical genomics. You can register for this event here and we encourage you to spread the word about this series.
Register for the entire 2023 series of DNA dialogue here.
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