As the research community looks towards digital technologies to manage the consent process, Australian Genomics has created a new version of its online platform CTRL (control) to enable free access for researchers.
The latest version can incorporate a plug-in that allows the research team (or administrator) to make changes to the platform and easily view all the data in the database. The code base is now available in a GitHub repository.
CTRL was created as a secure, web-based application founded on the principle of dynamic consent.
It enables participants to engage more with a research program, update their personal and contact details and choices about their involvement, and take the lead in decision making about the secondary use of their genomic and health information.
Project lead Dr Matilda Haas said the latest development was a significant milestone for the platform, which had been a massive multi-disciplinary effort calling on the expertise of many people in the Australian Genomics network at different times.
“We’re thrilled to be able to make this available to the research community after there has been so much national and international interest in it,” Dr Haas said.