Summary
Empowering Indigenous Australians to engage in and lead genomics research and its translation faces a raft of cultural, social, ethical, theoretical and practical challenges. It is these challenges that frame our collective response.
In partnership with communities, our program will develop the nation’s first roadmap for Indigenous leadership and inclusion in genomics, including the development of culturally informed engagement and governance strategies to support communities in their decision making about genomics and their data. Our vision is to develop a national Indigenous genomics architecture that centres and empowers Indigenous people to lead genomic research for the benefit of all Australians.
Project lead
Professor Alex Brown
Telethon Kids Institute
The Australian National University
Project Coordinator
Louise Lyons
Contact louise.lyons@telethonkids.org.au