What we offer

The support of a national coordination network of project officers, genetic counsellors and data administrators to facilitate research implementation and participant recruitment across the country

Guidance and support with the submission of human research ethics and governance applications nationally

Support in adapting a suite of established participant materials and resources for research consent, education, information, and research evaluation

Advice on the standardisation and optimisation of research data capture and the development of study databases, including access to technicians to customise REDCap and alternate data capture instruments

Access to the online research consent and engagement platform CTRL (‘Control’) for adaptation and application

Guidance on genomic data management, and data governance policies and procedures, to support secondary research and data discovery and sharing in alignment with international standards and best practice

Advice on national genomic research operations and specialist evaluation (health economics, implementation science) through our expert operational personnel and academics

Opportunities for input into research strategies and co-design of materials from partner patient support and advocacy groups via the Australian Genomics Community Advisory Group

Support in the translation of project outcomes into policy and practice